Here is Bentley Cave, diagnosed with acute lymphoblastic leukemia and MLL rearrangement
on August 7th 2016. He is being treated at Randall’s Children’s Hospital. He was tolerating chemo treatment fairly well until February 21st 2017 when he started showing symptoms of veno-occlusive disease due to a chemo and was admitted. The morning of March 7th
2017 he was sent back to the operating room for emergency surgery to have his entire colon removed. While the surgeon was being honest, he told me, ” I’m not sure if your son will even make it out of the operating room alive and if he does then we will have
to take it one day at a time”.
I went to my car and screamed for God to protect my son. When the surgery was over he told us it went well except for the fact that Bentley is in liver failure. By March 18th, 2017 the doctor said there wasn’t much more they could do for my son but that Stanford Children’s Hospital wanted to evaluate Bentley for a possible liver transplant, so we went to California in a medical plane. Within 3 days of being there on Bentley’s 3rd birthday, on March 21st, he was taken off life support and showing positive progress without even needing a liver transplant. Each and every day Bentley was getting better and better and stronger, so by April 4th, 2017 he was discharged from Stanford Children’s Hospital and we were on the next flight home. Since then, it has taken a lot of physical therapy to get him better and even now each day he gets stronger. He still has to wear foot braces but he is off his NG tube. He only uses it for medications. Bentley still has 18 months of chemo left. He’s a happy lovable boy now and has been in maintenance since July 3rd, 2017 with zero relapses.